New Fight SMA Web video updates the state of spinal muscular atrophy research

The Fight SMA 2009 Annual Spinal Muscular Atrophy Conference, The Good Fight, featured many firsts. One of the most important to SMA families was the first-ever webcast of the “Friends and Family” portion of the conference. Now, Fight SMA is announcing that the video from that webcast is available for online viewing and download.

Founded in 1991 in Richmond, Virginia, Fight SMA is an international non-profit organization dedicated to finding a treatment or cure for Spinal Muscular Atrophy (SMA), the leading inherited killer of children under two. The neuromuscular disease affects the victim’s motor neurons, causing muscle atrophy, loss of strength, and disability. The majority of children who are born with SMA die prematurely due to respiratory complications...